Leah is our precious little girl born 8 weeks early. When she was born by emergency C-Section, the doctors said she had the characteristics of having Down Syndrome. We were totally unaware! She was in the NICU for 7 weeks and we were release to go home.
Long story short, here is where our journey begins -
She was diagnosed with Pulmonary Hypertension just 2 weeks later and we were back in the hospital. She has since then been diagnosed with Chronic Kidney Disease where she has 30% use of her kidneys. Over her 15 months, she has had her bowels reconstructed due to perforation of the bowels and is now borderline "Short Gut Syndrome". We were able to do a heart cath a short time after that and found she has Pulmonary Vein Stenosis as well, which just means the 2 of the veins from her lungs to her heart are narrowing preventing the oxygen to flow correctly.
In the midst of all this she has been on the ventilator so many times and so often, this has damaged her lungs so now she has Chronic Lung Disease.
Here is where we are today! Follow us as our story continues!
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Wednesday, July 28, 2010
Introducing Leah ...
Leah is our precious little girl born 8 weeks early. When she was born by emergency C-Section, the doctors said she had the characteristics of having Down Syndrome. We were totally unaware! She was in the NICU for 7 weeks and we were release to go home.
Long story short, here is where our journey begins -
She was diagnosed with Pulmonary Hypertension just 2 weeks later and we were back in the hospital. She has since then been diagnosed with Chronic Kidney Disease where she has 30% use of her kidneys. Over her 15 months, she has had her bowels reconstructed due to perforation of the bowels and is now borderline "Short Gut Syndrome". We were able to do a heart cath a short time after that and found she has Pulmonary Vein Stenosis as well, which just means the 2 of the veins from her lungs to her heart are narrowing preventing the oxygen to flow correctly.
In the midst of all this she has been on the ventilator so many times and so often, this has damaged her lungs so now she has Chronic Lung Disease.
Here is where we are today! Follow us as our story continues!
Long story short, here is where our journey begins -
She was diagnosed with Pulmonary Hypertension just 2 weeks later and we were back in the hospital. She has since then been diagnosed with Chronic Kidney Disease where she has 30% use of her kidneys. Over her 15 months, she has had her bowels reconstructed due to perforation of the bowels and is now borderline "Short Gut Syndrome". We were able to do a heart cath a short time after that and found she has Pulmonary Vein Stenosis as well, which just means the 2 of the veins from her lungs to her heart are narrowing preventing the oxygen to flow correctly.
In the midst of all this she has been on the ventilator so many times and so often, this has damaged her lungs so now she has Chronic Lung Disease.
Here is where we are today! Follow us as our story continues!
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