Thursday, June 16, 2011
Thursday, February 24, 2011
I can not believe.....
I am just heart broken! How can anyone say a child is a burden, with or without a disability? Yes my daughter had problems - why on earth would I pull the plug on my daughter when there is always hope for a miracle from God? I was told today that some felt my daughter was a burden and should have let her go a long time ago and pulled the plug. My philosophy was always... when Leah showed us signs she was tired and was ready to go, we would allow that to happen but not until then.... God had to tell us when she was ready! Not man! That is like having an abortion which is not my belief! I will not or would not take a life and play God! How can anyone say a child is a burden?
Please read my other blog dedicated to my daughter Leah - www.leahshope.us
Please read my other blog dedicated to my daughter Leah - www.leahshope.us
Sunday, December 26, 2010
Farewell to Leah
I am so sorry for not posting this sooner... haven't been on my computer much till now!
Leah Ashley Adams was born April 25, 2009 in Shawnee, OK and passed from this life September 21, 2010 in Oklahoma City, OK.
Leah was born two months early and suffered with Downs’ Syndrome as well as Pulmonary Hypertension, Pulmonary Vein Stenosis , Chronic Lung Disease & Chronic Kidney Disease; as a result of complications she spent most of her life in the Children’s Hospital in Oklahoma City. The exception to that was the Holiday season of 2009 when Leah was stable enough to come home! She experienced one very special Thanksgiving and Christmas at home with her family. She was known as “Princess Leah” by many of her nurses in the PICU at OU Children’s Hospital. She was loved by her family and the medical staff that gave her such wonderful care. The family would personally like to thank Denna Guillory and Dr. Emilee Henry for the care they gave to Leah. “We Love You” like family!
Though her life was short, Leah made a difference in the life of so many that had the privilege of spending time with her. Most of all her mom and dad, who walked by her side through every surgery and sat by her bedside during long days of uncertainty; who made tremendous sacrifices to make sure that Leah experienced their loving presence and tender touch. Leah was such a special gift from God that they were compelled to put their lives on hold and in just over a year they experienced a lifetime of emotion and gave to Leah a lifetime of love.
Leah is survived by her father and mother, Paul and Shelly Adams of Tecumseh, OK….as well as 2 brothers, James Adams of Midwest City and Dakota Adams of Tecumseh. 2 sister-in-law’s, Heather Peeples Adams and Kailee Adams. As well as her new nephew, Ryder Adams of 3 months. Six Grandparents, Joyce Adams, Mary Lou & Jim Foster, Robert & Karla Matthews. Several aunts, uncles, cousins as well as several close friends of the family.
Graveside Memorial Service is scheduled for Saturday, September 25, 2010 at 1:00PM at Resthaven Funeral Home, 5001 E. Highland, Shawnee, OK.
Leah Ashley Adams was born April 25, 2009 in Shawnee, OK and passed from this life September 21, 2010 in Oklahoma City, OK.
Leah was born two months early and suffered with Downs’ Syndrome as well as Pulmonary Hypertension, Pulmonary Vein Stenosis , Chronic Lung Disease & Chronic Kidney Disease; as a result of complications she spent most of her life in the Children’s Hospital in Oklahoma City. The exception to that was the Holiday season of 2009 when Leah was stable enough to come home! She experienced one very special Thanksgiving and Christmas at home with her family. She was known as “Princess Leah” by many of her nurses in the PICU at OU Children’s Hospital. She was loved by her family and the medical staff that gave her such wonderful care. The family would personally like to thank Denna Guillory and Dr. Emilee Henry for the care they gave to Leah. “We Love You” like family!
Though her life was short, Leah made a difference in the life of so many that had the privilege of spending time with her. Most of all her mom and dad, who walked by her side through every surgery and sat by her bedside during long days of uncertainty; who made tremendous sacrifices to make sure that Leah experienced their loving presence and tender touch. Leah was such a special gift from God that they were compelled to put their lives on hold and in just over a year they experienced a lifetime of emotion and gave to Leah a lifetime of love.
Leah is survived by her father and mother, Paul and Shelly Adams of Tecumseh, OK….as well as 2 brothers, James Adams of Midwest City and Dakota Adams of Tecumseh. 2 sister-in-law’s, Heather Peeples Adams and Kailee Adams. As well as her new nephew, Ryder Adams of 3 months. Six Grandparents, Joyce Adams, Mary Lou & Jim Foster, Robert & Karla Matthews. Several aunts, uncles, cousins as well as several close friends of the family.
Graveside Memorial Service is scheduled for Saturday, September 25, 2010 at 1:00PM at Resthaven Funeral Home, 5001 E. Highland, Shawnee, OK.
Friday, September 10, 2010
Well... Things didn't go as planned!
We have had a rough few weeks, sorry for not updating sooner. We didn't get to bring Leah home on the home vent. I won't get into all the details but she got sick again and we have nearly lost her a couple times, CPR was needed. We are going for a 2nd heart cath next week. God willing, we will find something the doctors can correct and have our daughter back at home one day. That's our prayer anyway!
Thursday, July 29, 2010
Training Day 2 on Ventilator Training
We had a pretty good day today on the ventilator training. We went over the settings again and were quizzed individually. We made a huge dent in our checklist in order to go home.
We also demonstrated changing of Leah's trach. That went really well!
Leah, however is acting up a bit - the hospital tried to wean her albuterol treatments and slowly take it away eventually as well as made a few minor adjustments on the ventilator. Leah is telling the hospital that she didn't appreciate these changes... she has been wheezing more and is having a hard time keeping her sats up. We are on 10 Liters of oxygen at the moment and satting 93 - Got to try and wean that back to her base line of 3 or 4 liters.
This reaction she is doing is her pulmonary hypertension playing again. When she doesn't feel good and they try new things, she tends to desat - you have to leave her alone and let her recover before you can mess with her again. if you would like to read up on pulmonary hypertension, feel free to take a look at this resource...
Pulmonary Hypertension: A Patient's Survival Guide
All, in all, it was a productive day - a little concerning and stressful though! Praying she recovers in a timely manner so this doesn't prohibit us from going home soon!
We also demonstrated changing of Leah's trach. That went really well!
Leah, however is acting up a bit - the hospital tried to wean her albuterol treatments and slowly take it away eventually as well as made a few minor adjustments on the ventilator. Leah is telling the hospital that she didn't appreciate these changes... she has been wheezing more and is having a hard time keeping her sats up. We are on 10 Liters of oxygen at the moment and satting 93 - Got to try and wean that back to her base line of 3 or 4 liters.
This reaction she is doing is her pulmonary hypertension playing again. When she doesn't feel good and they try new things, she tends to desat - you have to leave her alone and let her recover before you can mess with her again. if you would like to read up on pulmonary hypertension, feel free to take a look at this resource...
Pulmonary Hypertension: A Patient's Survival Guide
All, in all, it was a productive day - a little concerning and stressful though! Praying she recovers in a timely manner so this doesn't prohibit us from going home soon!
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Thursday, June 16, 2011
Thursday, February 24, 2011
I can not believe.....
I am just heart broken! How can anyone say a child is a burden, with or without a disability? Yes my daughter had problems - why on earth would I pull the plug on my daughter when there is always hope for a miracle from God? I was told today that some felt my daughter was a burden and should have let her go a long time ago and pulled the plug. My philosophy was always... when Leah showed us signs she was tired and was ready to go, we would allow that to happen but not until then.... God had to tell us when she was ready! Not man! That is like having an abortion which is not my belief! I will not or would not take a life and play God! How can anyone say a child is a burden?
Please read my other blog dedicated to my daughter Leah - www.leahshope.us
Please read my other blog dedicated to my daughter Leah - www.leahshope.us
Sunday, December 26, 2010
Farewell to Leah
I am so sorry for not posting this sooner... haven't been on my computer much till now!
Leah Ashley Adams was born April 25, 2009 in Shawnee, OK and passed from this life September 21, 2010 in Oklahoma City, OK.
Leah was born two months early and suffered with Downs’ Syndrome as well as Pulmonary Hypertension, Pulmonary Vein Stenosis , Chronic Lung Disease & Chronic Kidney Disease; as a result of complications she spent most of her life in the Children’s Hospital in Oklahoma City. The exception to that was the Holiday season of 2009 when Leah was stable enough to come home! She experienced one very special Thanksgiving and Christmas at home with her family. She was known as “Princess Leah” by many of her nurses in the PICU at OU Children’s Hospital. She was loved by her family and the medical staff that gave her such wonderful care. The family would personally like to thank Denna Guillory and Dr. Emilee Henry for the care they gave to Leah. “We Love You” like family!
Though her life was short, Leah made a difference in the life of so many that had the privilege of spending time with her. Most of all her mom and dad, who walked by her side through every surgery and sat by her bedside during long days of uncertainty; who made tremendous sacrifices to make sure that Leah experienced their loving presence and tender touch. Leah was such a special gift from God that they were compelled to put their lives on hold and in just over a year they experienced a lifetime of emotion and gave to Leah a lifetime of love.
Leah is survived by her father and mother, Paul and Shelly Adams of Tecumseh, OK….as well as 2 brothers, James Adams of Midwest City and Dakota Adams of Tecumseh. 2 sister-in-law’s, Heather Peeples Adams and Kailee Adams. As well as her new nephew, Ryder Adams of 3 months. Six Grandparents, Joyce Adams, Mary Lou & Jim Foster, Robert & Karla Matthews. Several aunts, uncles, cousins as well as several close friends of the family.
Graveside Memorial Service is scheduled for Saturday, September 25, 2010 at 1:00PM at Resthaven Funeral Home, 5001 E. Highland, Shawnee, OK.
Leah Ashley Adams was born April 25, 2009 in Shawnee, OK and passed from this life September 21, 2010 in Oklahoma City, OK.
Leah was born two months early and suffered with Downs’ Syndrome as well as Pulmonary Hypertension, Pulmonary Vein Stenosis , Chronic Lung Disease & Chronic Kidney Disease; as a result of complications she spent most of her life in the Children’s Hospital in Oklahoma City. The exception to that was the Holiday season of 2009 when Leah was stable enough to come home! She experienced one very special Thanksgiving and Christmas at home with her family. She was known as “Princess Leah” by many of her nurses in the PICU at OU Children’s Hospital. She was loved by her family and the medical staff that gave her such wonderful care. The family would personally like to thank Denna Guillory and Dr. Emilee Henry for the care they gave to Leah. “We Love You” like family!
Though her life was short, Leah made a difference in the life of so many that had the privilege of spending time with her. Most of all her mom and dad, who walked by her side through every surgery and sat by her bedside during long days of uncertainty; who made tremendous sacrifices to make sure that Leah experienced their loving presence and tender touch. Leah was such a special gift from God that they were compelled to put their lives on hold and in just over a year they experienced a lifetime of emotion and gave to Leah a lifetime of love.
Leah is survived by her father and mother, Paul and Shelly Adams of Tecumseh, OK….as well as 2 brothers, James Adams of Midwest City and Dakota Adams of Tecumseh. 2 sister-in-law’s, Heather Peeples Adams and Kailee Adams. As well as her new nephew, Ryder Adams of 3 months. Six Grandparents, Joyce Adams, Mary Lou & Jim Foster, Robert & Karla Matthews. Several aunts, uncles, cousins as well as several close friends of the family.
Graveside Memorial Service is scheduled for Saturday, September 25, 2010 at 1:00PM at Resthaven Funeral Home, 5001 E. Highland, Shawnee, OK.
Friday, September 10, 2010
Well... Things didn't go as planned!
We have had a rough few weeks, sorry for not updating sooner. We didn't get to bring Leah home on the home vent. I won't get into all the details but she got sick again and we have nearly lost her a couple times, CPR was needed. We are going for a 2nd heart cath next week. God willing, we will find something the doctors can correct and have our daughter back at home one day. That's our prayer anyway!
Thursday, July 29, 2010
Training Day 2 on Ventilator Training
We had a pretty good day today on the ventilator training. We went over the settings again and were quizzed individually. We made a huge dent in our checklist in order to go home.
We also demonstrated changing of Leah's trach. That went really well!
Leah, however is acting up a bit - the hospital tried to wean her albuterol treatments and slowly take it away eventually as well as made a few minor adjustments on the ventilator. Leah is telling the hospital that she didn't appreciate these changes... she has been wheezing more and is having a hard time keeping her sats up. We are on 10 Liters of oxygen at the moment and satting 93 - Got to try and wean that back to her base line of 3 or 4 liters.
This reaction she is doing is her pulmonary hypertension playing again. When she doesn't feel good and they try new things, she tends to desat - you have to leave her alone and let her recover before you can mess with her again. if you would like to read up on pulmonary hypertension, feel free to take a look at this resource...
Pulmonary Hypertension: A Patient's Survival Guide
All, in all, it was a productive day - a little concerning and stressful though! Praying she recovers in a timely manner so this doesn't prohibit us from going home soon!
We also demonstrated changing of Leah's trach. That went really well!
Leah, however is acting up a bit - the hospital tried to wean her albuterol treatments and slowly take it away eventually as well as made a few minor adjustments on the ventilator. Leah is telling the hospital that she didn't appreciate these changes... she has been wheezing more and is having a hard time keeping her sats up. We are on 10 Liters of oxygen at the moment and satting 93 - Got to try and wean that back to her base line of 3 or 4 liters.
This reaction she is doing is her pulmonary hypertension playing again. When she doesn't feel good and they try new things, she tends to desat - you have to leave her alone and let her recover before you can mess with her again. if you would like to read up on pulmonary hypertension, feel free to take a look at this resource...
Pulmonary Hypertension: A Patient's Survival Guide
All, in all, it was a productive day - a little concerning and stressful though! Praying she recovers in a timely manner so this doesn't prohibit us from going home soon!
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